Once More - A Parents' Devotional

Hebrews 12:26-29

"At that time his voice shook the earth, but now he has promised, 'Once more I will shake not only the earth, but all the heavens.' The words 'once more' indicate the removing of what can be shaken - that is, created things - so that what cannot be shaken may remain. Therefore, since we are receiving a kingdom that cannot be shaken, let us be thankful and worship God acceptably, with reverence and awe, for our God is a consuming fire."

There is a certain amount of homicidal thoughts I've harbored over the past several weeks, given the state of the children God has blessed me with.  The rage felt towards the people who have harmed them - the rage towards a system that didn't and won't fight for them - the rage at their behaviors that persist after so many years of treatment - and the rage at myself for feeling like I'm failing them day after day. Yesterday, I hit my tipping point. All of the things that I don't share - the things that are too personal and not just mine to share - they came pouring out of me in a volcanic explosion of frustration. Trying to hold back the emotions after seeing the effects of repeated abuse that has been done to my children, both the ones we could rescue and the one that we cannot, has broken me.

To say that I have felt "shaken" is an understatement.

Sunday night, as I sat in our small support group for families like ours, I realized that I am not the only shaken one at this moment. Between the therapies, tests, surgeries, IEPs, calls from the school, questions about birth families, remembered traumas, anxiety, fear, and heart-breaking discouragement, I recognized that we are all quite shaken.

My goal was, ultimately, to pull back. To forget. To push away all reminders of the horrors currently being shown to me. And with each attempt to move away, I was reminded of a time long, long ago when God's people went about life on their own. The time when they didn't listen to the very clear words that were being spoken to them. The time when the earth shook with the intention of God behind it. Do you see that God will literally allow the earth to be shaken if it will get us to look to Him?

It seems cruel, I know. I've sat many times with my eyes tightly shut, arms crossed over my chest, and grumbling under my breath because God wasn't "being fair"... I demonstrated a very unholy tantrum to a very holy God because my world was being shaken and I didn't like it. (Insert the proverbial "Wah, Wah, Waaaah" here.) But in Hebrews, God says He will shake not only the earth, but the heavens as well, proof to me that what breaks my heart also breaks Gods - but even more, it is to show that God is willing to test what can be shaken and what cannot - to display to us what is supposed to fall away and what is eternal. In a sense, God is panning our lives for gold, sifting and shaking away the rubbish, the behaviors, the abuses, the rage - leaving behind what is eternal.

That is pure beauty and love.

But friends, remember that what is eternal may not appear to us right now. We may feel the shaking for days, weeks, years (I know, you choked on a sob, too, didn't you?) We pray it isn't years before the sifting shows results, but the chances are, when we are parenting children who have been hurt and damaged so severely, that years of shaking and settling (wash, rinse, repeat) is what we are in for. It's what we signed up for.

But in Hebrews it does say that in the end, we are receiving a kingdom that is flawless. Our kids will not bring their baggage with them into eternity. WE will not bring ours either. We are shaken now and refined in His consuming fire so that our peace and joy will be that much more miraculous. Our ability to worship a God who shakes us is a testament to how great we know He is. We couldn't allow such pain if we didn't trust our Shaker. And it is a our willingness to allow God to do His job that is our tribute to Him.

2 Corinthians 4:16-18

"Therefore we do not lose heart. Though outwardly we are wasting away, inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all."

Finding Hope: Parenting Children With Trauma

Ok, so apart from realizing that I stand with my legs too far apart and that my outfit was put together by a blind elephant from the 1990's -- I mean, once we get past all that, some of you may enjoy hearing my break-out session from the Imagine Conference in Pittsburgh. I was blessed to be given the opportunity to speak on raising children with trauma and how that effects our day to day lives as parents.

If anything, I hope you can relate, have a good laugh, cry, and remember that you are not weak because you can't "fix" your kiddos. You are strong because you have survived another day and still get up again to start the day all over. It's conferences like these that remind me how many of us there are and that together, we can move mountains.

God bless and enjoy!

The Spirit Animals of Our Children

When I think of special needs parenting, I feel exhausted... mainly because I'm living it daily, as many of you are. Those daily "quirks" that make our kids extra crunchy, the idiosyncrasies that feel like nails on a chalkboard - those are the things that nervous break downs are made of. After all, there are times when I look at my children and all I see are wild animals. They act like they can't be tamed and they have the social skills to prove it!

So, this week, I decided to battle these quirks with some humor. In a day and age of memes and gifs, I thought it would be appropriate to create a post that let us giggle a bit at our children's oddities...

These are the Spirit Animals of our children.

The Isolator

The Depressed

The Binger

The Tantrumer

The Self-Stimmer

The Liar

The One With No Personal Space

The RAD - Inhibited

The RAD - Disinhibited

The Anxious

The Self-Harmer

The Unmotivated

The Oppositional Defiant

The Attention-Seeker

The Artificially Charming

The One With Pica

The Uncomfortable Starer

The Bully

The Fecal Smearer

The Inappropriate

The Hoarder

The One With ALL The Rage

The One With A Few Learning Delays

The ADHD

The Refuser of Showers

The Runaway

The Illegal Substance Experimenter

The Thief

The Promiscuous

The Screamer

The One With OCD

The Property Destroyer

The Socially Awkward

And Finally....

The Mama by 8:00 pm

"Strength and dignity are her clothing,and she laughs at the time to come."

                                     Proverbs 31:25

To Place or Not To Place

I expect to receive backlash from this post, but as I contemplated writing it, I found that the pros outweigh the cons. The ability for parents and guardians to be able to have an open dialogue about placement of their child in a hospital or residential facility is a need that oftentimes goes unmet. Whether it’s due to stigma, guilt, or the feeling of having failed a child – we speak less about the emotional turmoil leading up to placement than we do the everyday battles themselves.

And quite frankly, it is that very place of being in the unknown, the questioning and the decision-making, the wondering if you’re making the right or the wrong choice – that is the time that your emotions are the most raw. Wondering if you were meant to parent this child, handle this situation, manage this mental illness / behavioral problem, etc. It’s in those moments of questioning that we can become muddled and dizzy with what is right in front of us.

When do we contemplate placement? When have we done all that we can do and hand the reigns over to a team of others?

For me, I sit with these very questions in this moment. After months of making apparent progress, my daughter with Reactive Attachment Disorder put my 3-year-old son in a very unsafe situation. This is not the first, second, nor third time we have faced this dilemma with her. However, this time she reported that she did not feel badly about this and that she doesn’t believe she was wrong. Upon further investigation into the situation, other evidence around her room suggested that this was not a singular relapse.

I feel the betrayal and heartbreak of knowing that my son has been compromised because I allowed myself to let my guard down – because I believed that things were getting better, that she was learning emotions and empathy and how to control her impulses. I let us feel “normal” together… and now I must pay the price for that. I also know that I will be scoffed at for sharing too much personal information about my family and our situation. And yet how else are we to support one another and create a community of help for one another if we limit ourselves to speaking of only what is comfortable – what is “permissible”?

So many parents have emailed me over the past several years, struggling with this same dilemma. They ask for input on agencies and when they should finally let themselves take a break while the professionals give it a try with their child. And I have always said the same thing – this is a personal choice, but when you know you have loved and persevered and done all that you can, and you or your family are still being endangered, then you never have to feel like you’ve let anyone down, including yourself and your child.

The regular world of parents and families doesn’t understand the daily lying and theft – the number of calls from the school you get and the emails from angry parents. They don’t lay awake with anxiety over their child’s behaviors every night or feel physically ill on a regular basis because with every 2 steps forward, you’re forced to take 10 steps back. The regular world sees your child as charming and amiable, while you experience something far different behind closed doors. The inability to connect with your child – to feel honest emotions with them – to cuddle them and to look forward to the future together – these are things that the RAD parent faces.

And sadly, children with this disorder come by it quite often from serious neglect and abuse, cycles that continue to play out as they grow older, forever compromising their relationships with the world. As the parents, we feel guilty for even thinking of handing them over to the state, an agency, or even to a hospital – we know our children didn’t create their diagnosis. They didn’t abuse themselves. They were not in charge of anything that lead them to where they are today…

But neither did my 3-year-old son. And whereas I cannot put my daughter’s abusers on trial because this judicial and child welfare system failed her and my older son in such horrific and atrocious ways, all I can do is promise safety to each of them from this day forward. So, to the best of my ability, that is how I will make my decisions. Whether we place or we don’t, I choose to keep my promise to all 4 of my children. I will continue to fight for change to be made in child welfare and I will continue to advocate for the least of these… starting right here in my own home.

If you find yourself in a similar situation, know that you’re not alone. You’re not a failure and you’re not weak. Do all that you can and then trust that God will utilize whatever else is available to do the rest, even if that means it is no longer in your hands.

We’ve got this and we’ve got each other. Many prayers and much love to you all.

"Shame!"

          Last night I discovered that my 4th grade daughter has been forging my initials on school documents for almost a month to avoid missing recess. That means that for 3 and a half weeks, I have been harboring a felon. Now, honestly, this is the behavior I expect from my 6th grade son. With all of his mind-boggling tantrums and homicidal threats lately, forgery didn’t seem like something too far off of his grid. However, I generally ruled out this type of behavior because it requires, how do I put this… intelligence… to pull this type of scheme off. And quite honestly, we haven’t had to worry about that particular amount of intelligence as of yet.

            But it seems that I have underestimated my daughter’s capabilities, as well as the lengths she will go to avoid sitting out for recess. It’s odd, but there was a certain part of me that felt almost impressed that she was able to pull something like this off for so long. I had been doing what 4th grade parents are instructed to do – start pulling back on being “helicopter mom” and allowing the kids to fail or succeed (to a certain degree) on their own. It’s their time to learn how to organize their papers, be responsible for getting signatures, and miss recess when things are not signed or completed accurately.

            That being said, I secretly watch her grades on the new school Skyward program, and since most of them were in the average range, it didn’t occur to me that I was being played… until last night, when I realized that she didn’t want me to see her planner. THEN I knew something was up. She had been hiding behind the distraction of her older brother’s rages and her toddler brother’s Terrible Three’s, and she had been doing so extremely well! My daughter actually banked on the fact that I wouldn’t check up on her because of the other chaos going on. She played me like the fiddle that I am, whispering words of how proud she is of herself for doing so well lately, and saying how she “feels just awful” that her older brother can’t seem to get on track. (Blah, blah, blah.) She blew so much smoke up my rear end that I could’ve passed for a chimney.

            Oh my gosh, I seriously just recalled half a dozen times that my daughter massaged my feet or complimented me out of the blue recently… that tricky little monster! I should’ve known something was up when she told me my unwashed hair of 3 days was “stunning”, because seriously? Stunning? You’re NINE. Say “cool” next time you’re trying to cover up your sneakiness!

            On top of all the manipulating and the forging and the deception… this child had the audacity to LIE, to my face, 5 times in a row – digging herself deeper into the trench that will now be the burial ground for her social life. Because the Fiddle has regained her rightful spot as the Fiddler, as Fiddlers tend to do. Goodbye gymnastics! Adios birthday parties and play dates! Bon voyage recess! (Because YES I emailed her teachers and informed them of her need to sit and find repentance during the 25 minutes that used to be her school play time.) At the risk of going overboard, I actually thought about cutting out an “F” in red cloth and requiring her to wear it on her clothing until I feel she has securely learned her lesson, but apparently the letter F could cause some confusion that is unnecessary for the 4th graders of our rural community.

            Therefore, if you live in the local area and see my child out in public, feel free to point your finger at her while yelling “SHAME!” I would consider this fair and equal punishment.

          (PS, before you get all judgy and condescending, my daughter came up to me after school and told me that missing recess is just fine with her because they miss it half the time anyways because the class talks too much. Yeah. She told me my consequence meant nothing.)