An Everlasting Fugue

I’m currently sitting at my computer, fluffiest cat in my lap chewing on a hole in my jeans, while I pick my nails and rigorously assess my hair for split ends. This is what my writing process has come to. The dos and don’ts of what can and cannot be shared, the ever-increasing desire for privacy from my children as they age, legalities regarding Isaac and the child welfare system… these are the things that paralyze my writing – my very need to release has been hushed. There are so many thoughts swirling about my mind, preventing me from putting pen to paper, that I fear I will be bald and fingernail-less within the hour! So please, bear with me.

My husband said it best yesterday when he referred to our oldest two as the Mozart and Beethoven of nonsensical arguments. I’ll forgive him for the misquote due to his lack of composer knowledge… because obviously my kids are more like Bach. A schizophrenic Bach who got stuck in an endless loop of fugues, creating chaos while feeding off the other’s energy. Their composition is entitled Cameron and Taylor – An Everlasting Fugue. These two children are, in a sense, The Song That Never Ends. (At least Shari Lewis gets to rest in peace, unlike those of us living in my home.)

It’s to the point that even the three-year-old recognizes the disparities, both social and intellectual, between himself and his siblings. He regularly tells them to stop arguing and to “Quit acting like babies!” He reiterates that he already told them something ten times and, because I know he is my child, when they continue to ignore his directions he puts his arms in the air with a flourish and yells “I’m done!” before stomping away. (I swear it’s like looking in a mirror!)

But what Wyatt fails to understand at his young age is that Cameron and Taylor are stunted. Taylor remains under close watch and with limited freedom due to her extreme need to have the adults in her world enforcing moment by moment safety measures over her. This confuses Wyatt, as well as many of those close to us. When others look at her, they see a beautiful, vibrant 10-year-old. What they miss is the overwhelming need my daughter has to love and be loved in the only way she was shown as a young girl – a way that was traumatizing and abusive.

Even with Cameron, Wyatt constantly yells at him to stop being mean. And just like the regressed, overgrown toddler that Cameron is, he continues to instigate and torment, despite the consequences. But this week was a difficult one for him, both physically and emotionally. Not only did he have a kidney relapse after over-exerting himself on a youth group retreat, he also had his neuropsychological testing done. Whereas we haven’t received the results back from the 3.5-hour test, it was evident by the looks on both Cameron’s and the doctor’s faces that our follow-up appointment will be one that is lengthy. If that weren’t enough, on our way home from this exhausting test, we had no choice but to pass the town where Cameron lived before being adopted.

I do my best to avoid certain towns and neighborhoods with my children, but there are times when there is NO other route and the memories just start flooding. This was the case with my son as we drove home in silence from the doctor’s office. It was as if he couldn’t handle the thoughts in his head and they had to come out. As he spouted story after story, feeling after feeling, he made a statement that I’m still trying to process days later. He said that he has these feelings and thoughts that take over and he can’t stop thinking about them until he acts on them – things that make him want to do things that are dangerous, harmful to others, and scary. He admitted to actions that I had no idea about, things that he had previously kept hidden or blamed on others.

Ok, these are the moments that make you question becoming a parent, let’s be honest! There are days where I just sit there and wonder if I’m harboring future predators and serial killers (this increases the nail biting and hair picking by about a million percent) and then there are other days when I remind myself that it is RAD, brain damage, learned behavior – that they have a therapist, mostly sane parents, and a very big God. Those are the days that I remember to breathe as I push thoughts of felonies from my mind.

And then there’s Isaac. The sweet boy who is quickly fading under the perpetual weighty exposure of drugs, abuse, sex, and instability. With each new update on his condition, each failure of the police or CYS to rescue him, each broken Christmas toy and returned birthday gift – I am devastatingly aware that he was the one that was left behind. Cameron and Taylor were saved, even if it may have been too late. But Isaac is just a number – a statistic of gross negligence from society who wants to be helped but is quickly learning that help will not come. At least not for him. However… his smile is still a sight to behold. When I catch a glimpse of a new picture and see a hint of the twinkle that I remember so well, I feel a warmth spread through my soul. He is not a number to me.

So, on those days that my kids are fugueing up my very last nerve, I choose to remember the moments that have been special – like when Cameron thought Wyatt was having hallucinations because he was talking to himself (aka, using his imagination), or when Taylor asked us at kids’ church to pray for all the children who didn’t get cute boots for Christmas like she did, or when Wyatt told me he would be my best friend forever if I gave him some Doritos (followed by screams that I’m a “bad girl” because I didn’t give him Doritos), or when I think of Isaac’s belly laugh, the one that will never leave my mind, even though I’m sure he would wreak just as much havoc as the others if he were here with us today!

Despite the nonsensical arguments, the nail biting, and the split end picking, there is a beautiful and slightly distorted, off-key composition taking place in our home. Whether it’s a day of putting in ear plugs or choosing to sing along to the chaos, I know that our music will continue to grow and change – our everlasting fugue.

Finding Hope: Parenting Children With Trauma

Ok, so apart from realizing that I stand with my legs too far apart and that my outfit was put together by a blind elephant from the 1990's -- I mean, once we get past all that, some of you may enjoy hearing my break-out session from the Imagine Conference in Pittsburgh. I was blessed to be given the opportunity to speak on raising children with trauma and how that effects our day to day lives as parents.

If anything, I hope you can relate, have a good laugh, cry, and remember that you are not weak because you can't "fix" your kiddos. You are strong because you have survived another day and still get up again to start the day all over. It's conferences like these that remind me how many of us there are and that together, we can move mountains.

God bless and enjoy!

The Spirit Animals of Our Children

When I think of special needs parenting, I feel exhausted... mainly because I'm living it daily, as many of you are. Those daily "quirks" that make our kids extra crunchy, the idiosyncrasies that feel like nails on a chalkboard - those are the things that nervous break downs are made of. After all, there are times when I look at my children and all I see are wild animals. They act like they can't be tamed and they have the social skills to prove it!

So, this week, I decided to battle these quirks with some humor. In a day and age of memes and gifs, I thought it would be appropriate to create a post that let us giggle a bit at our children's oddities...

These are the Spirit Animals of our children.

The Isolator

The Depressed

The Binger

The Tantrumer

The Self-Stimmer

The Liar

The One With No Personal Space

The RAD - Inhibited

The RAD - Disinhibited

The Anxious

The Self-Harmer

The Unmotivated

The Oppositional Defiant

The Attention-Seeker

The Artificially Charming

The One With Pica

The Uncomfortable Starer

The Bully

The Fecal Smearer

The Inappropriate

The Hoarder

The One With ALL The Rage

The One With A Few Learning Delays

The ADHD

The Refuser of Showers

The Runaway

The Illegal Substance Experimenter

The Thief

The Promiscuous

The Screamer

The One With OCD

The Property Destroyer

The Socially Awkward

And Finally....

The Mama by 8:00 pm

"Strength and dignity are her clothing,and she laughs at the time to come."

                                     Proverbs 31:25

To Place or Not To Place

I expect to receive backlash from this post, but as I contemplated writing it, I found that the pros outweigh the cons. The ability for parents and guardians to be able to have an open dialogue about placement of their child in a hospital or residential facility is a need that oftentimes goes unmet. Whether it’s due to stigma, guilt, or the feeling of having failed a child – we speak less about the emotional turmoil leading up to placement than we do the everyday battles themselves.

And quite frankly, it is that very place of being in the unknown, the questioning and the decision-making, the wondering if you’re making the right or the wrong choice – that is the time that your emotions are the most raw. Wondering if you were meant to parent this child, handle this situation, manage this mental illness / behavioral problem, etc. It’s in those moments of questioning that we can become muddled and dizzy with what is right in front of us.

When do we contemplate placement? When have we done all that we can do and hand the reigns over to a team of others?

For me, I sit with these very questions in this moment. After months of making apparent progress, my daughter with Reactive Attachment Disorder put my 3-year-old son in a very unsafe situation. This is not the first, second, nor third time we have faced this dilemma with her. However, this time she reported that she did not feel badly about this and that she doesn’t believe she was wrong. Upon further investigation into the situation, other evidence around her room suggested that this was not a singular relapse.

I feel the betrayal and heartbreak of knowing that my son has been compromised because I allowed myself to let my guard down – because I believed that things were getting better, that she was learning emotions and empathy and how to control her impulses. I let us feel “normal” together… and now I must pay the price for that. I also know that I will be scoffed at for sharing too much personal information about my family and our situation. And yet how else are we to support one another and create a community of help for one another if we limit ourselves to speaking of only what is comfortable – what is “permissible”?

So many parents have emailed me over the past several years, struggling with this same dilemma. They ask for input on agencies and when they should finally let themselves take a break while the professionals give it a try with their child. And I have always said the same thing – this is a personal choice, but when you know you have loved and persevered and done all that you can, and you or your family are still being endangered, then you never have to feel like you’ve let anyone down, including yourself and your child.

The regular world of parents and families doesn’t understand the daily lying and theft – the number of calls from the school you get and the emails from angry parents. They don’t lay awake with anxiety over their child’s behaviors every night or feel physically ill on a regular basis because with every 2 steps forward, you’re forced to take 10 steps back. The regular world sees your child as charming and amiable, while you experience something far different behind closed doors. The inability to connect with your child – to feel honest emotions with them – to cuddle them and to look forward to the future together – these are things that the RAD parent faces.

And sadly, children with this disorder come by it quite often from serious neglect and abuse, cycles that continue to play out as they grow older, forever compromising their relationships with the world. As the parents, we feel guilty for even thinking of handing them over to the state, an agency, or even to a hospital – we know our children didn’t create their diagnosis. They didn’t abuse themselves. They were not in charge of anything that lead them to where they are today…

But neither did my 3-year-old son. And whereas I cannot put my daughter’s abusers on trial because this judicial and child welfare system failed her and my older son in such horrific and atrocious ways, all I can do is promise safety to each of them from this day forward. So, to the best of my ability, that is how I will make my decisions. Whether we place or we don’t, I choose to keep my promise to all 4 of my children. I will continue to fight for change to be made in child welfare and I will continue to advocate for the least of these… starting right here in my own home.

If you find yourself in a similar situation, know that you’re not alone. You’re not a failure and you’re not weak. Do all that you can and then trust that God will utilize whatever else is available to do the rest, even if that means it is no longer in your hands.

We’ve got this and we’ve got each other. Many prayers and much love to you all.

"Shame!"

          Last night I discovered that my 4th grade daughter has been forging my initials on school documents for almost a month to avoid missing recess. That means that for 3 and a half weeks, I have been harboring a felon. Now, honestly, this is the behavior I expect from my 6th grade son. With all of his mind-boggling tantrums and homicidal threats lately, forgery didn’t seem like something too far off of his grid. However, I generally ruled out this type of behavior because it requires, how do I put this… intelligence… to pull this type of scheme off. And quite honestly, we haven’t had to worry about that particular amount of intelligence as of yet.

            But it seems that I have underestimated my daughter’s capabilities, as well as the lengths she will go to avoid sitting out for recess. It’s odd, but there was a certain part of me that felt almost impressed that she was able to pull something like this off for so long. I had been doing what 4th grade parents are instructed to do – start pulling back on being “helicopter mom” and allowing the kids to fail or succeed (to a certain degree) on their own. It’s their time to learn how to organize their papers, be responsible for getting signatures, and miss recess when things are not signed or completed accurately.

            That being said, I secretly watch her grades on the new school Skyward program, and since most of them were in the average range, it didn’t occur to me that I was being played… until last night, when I realized that she didn’t want me to see her planner. THEN I knew something was up. She had been hiding behind the distraction of her older brother’s rages and her toddler brother’s Terrible Three’s, and she had been doing so extremely well! My daughter actually banked on the fact that I wouldn’t check up on her because of the other chaos going on. She played me like the fiddle that I am, whispering words of how proud she is of herself for doing so well lately, and saying how she “feels just awful” that her older brother can’t seem to get on track. (Blah, blah, blah.) She blew so much smoke up my rear end that I could’ve passed for a chimney.

            Oh my gosh, I seriously just recalled half a dozen times that my daughter massaged my feet or complimented me out of the blue recently… that tricky little monster! I should’ve known something was up when she told me my unwashed hair of 3 days was “stunning”, because seriously? Stunning? You’re NINE. Say “cool” next time you’re trying to cover up your sneakiness!

            On top of all the manipulating and the forging and the deception… this child had the audacity to LIE, to my face, 5 times in a row – digging herself deeper into the trench that will now be the burial ground for her social life. Because the Fiddle has regained her rightful spot as the Fiddler, as Fiddlers tend to do. Goodbye gymnastics! Adios birthday parties and play dates! Bon voyage recess! (Because YES I emailed her teachers and informed them of her need to sit and find repentance during the 25 minutes that used to be her school play time.) At the risk of going overboard, I actually thought about cutting out an “F” in red cloth and requiring her to wear it on her clothing until I feel she has securely learned her lesson, but apparently the letter F could cause some confusion that is unnecessary for the 4th graders of our rural community.

            Therefore, if you live in the local area and see my child out in public, feel free to point your finger at her while yelling “SHAME!” I would consider this fair and equal punishment.

          (PS, before you get all judgy and condescending, my daughter came up to me after school and told me that missing recess is just fine with her because they miss it half the time anyways because the class talks too much. Yeah. She told me my consequence meant nothing.)