Once More - A Parents' Devotional

Hebrews 12:26-29

"At that time his voice shook the earth, but now he has promised, 'Once more I will shake not only the earth, but all the heavens.' The words 'once more' indicate the removing of what can be shaken - that is, created things - so that what cannot be shaken may remain. Therefore, since we are receiving a kingdom that cannot be shaken, let us be thankful and worship God acceptably, with reverence and awe, for our God is a consuming fire."

There is a certain amount of homicidal thoughts I've harbored over the past several weeks, given the state of the children God has blessed me with.  The rage felt towards the people who have harmed them - the rage towards a system that didn't and won't fight for them - the rage at their behaviors that persist after so many years of treatment - and the rage at myself for feeling like I'm failing them day after day. Yesterday, I hit my tipping point. All of the things that I don't share - the things that are too personal and not just mine to share - they came pouring out of me in a volcanic explosion of frustration. Trying to hold back the emotions after seeing the effects of repeated abuse that has been done to my children, both the ones we could rescue and the one that we cannot, has broken me.

To say that I have felt "shaken" is an understatement.

Sunday night, as I sat in our small support group for families like ours, I realized that I am not the only shaken one at this moment. Between the therapies, tests, surgeries, IEPs, calls from the school, questions about birth families, remembered traumas, anxiety, fear, and heart-breaking discouragement, I recognized that we are all quite shaken.

My goal was, ultimately, to pull back. To forget. To push away all reminders of the horrors currently being shown to me. And with each attempt to move away, I was reminded of a time long, long ago when God's people went about life on their own. The time when they didn't listen to the very clear words that were being spoken to them. The time when the earth shook with the intention of God behind it. Do you see that God will literally allow the earth to be shaken if it will get us to look to Him?

It seems cruel, I know. I've sat many times with my eyes tightly shut, arms crossed over my chest, and grumbling under my breath because God wasn't "being fair"... I demonstrated a very unholy tantrum to a very holy God because my world was being shaken and I didn't like it. (Insert the proverbial "Wah, Wah, Waaaah" here.) But in Hebrews, God says He will shake not only the earth, but the heavens as well, proof to me that what breaks my heart also breaks Gods - but even more, it is to show that God is willing to test what can be shaken and what cannot - to display to us what is supposed to fall away and what is eternal. In a sense, God is panning our lives for gold, sifting and shaking away the rubbish, the behaviors, the abuses, the rage - leaving behind what is eternal.

That is pure beauty and love.

But friends, remember that what is eternal may not appear to us right now. We may feel the shaking for days, weeks, years (I know, you choked on a sob, too, didn't you?) We pray it isn't years before the sifting shows results, but the chances are, when we are parenting children who have been hurt and damaged so severely, that years of shaking and settling (wash, rinse, repeat) is what we are in for. It's what we signed up for.

But in Hebrews it does say that in the end, we are receiving a kingdom that is flawless. Our kids will not bring their baggage with them into eternity. WE will not bring ours either. We are shaken now and refined in His consuming fire so that our peace and joy will be that much more miraculous. Our ability to worship a God who shakes us is a testament to how great we know He is. We couldn't allow such pain if we didn't trust our Shaker. And it is a our willingness to allow God to do His job that is our tribute to Him.

2 Corinthians 4:16-18

"Therefore we do not lose heart. Though outwardly we are wasting away, inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all."

To Place or Not To Place

I expect to receive backlash from this post, but as I contemplated writing it, I found that the pros outweigh the cons. The ability for parents and guardians to be able to have an open dialogue about placement of their child in a hospital or residential facility is a need that oftentimes goes unmet. Whether it’s due to stigma, guilt, or the feeling of having failed a child – we speak less about the emotional turmoil leading up to placement than we do the everyday battles themselves.

And quite frankly, it is that very place of being in the unknown, the questioning and the decision-making, the wondering if you’re making the right or the wrong choice – that is the time that your emotions are the most raw. Wondering if you were meant to parent this child, handle this situation, manage this mental illness / behavioral problem, etc. It’s in those moments of questioning that we can become muddled and dizzy with what is right in front of us.

When do we contemplate placement? When have we done all that we can do and hand the reigns over to a team of others?

For me, I sit with these very questions in this moment. After months of making apparent progress, my daughter with Reactive Attachment Disorder put my 3-year-old son in a very unsafe situation. This is not the first, second, nor third time we have faced this dilemma with her. However, this time she reported that she did not feel badly about this and that she doesn’t believe she was wrong. Upon further investigation into the situation, other evidence around her room suggested that this was not a singular relapse.

I feel the betrayal and heartbreak of knowing that my son has been compromised because I allowed myself to let my guard down – because I believed that things were getting better, that she was learning emotions and empathy and how to control her impulses. I let us feel “normal” together… and now I must pay the price for that. I also know that I will be scoffed at for sharing too much personal information about my family and our situation. And yet how else are we to support one another and create a community of help for one another if we limit ourselves to speaking of only what is comfortable – what is “permissible”?

So many parents have emailed me over the past several years, struggling with this same dilemma. They ask for input on agencies and when they should finally let themselves take a break while the professionals give it a try with their child. And I have always said the same thing – this is a personal choice, but when you know you have loved and persevered and done all that you can, and you or your family are still being endangered, then you never have to feel like you’ve let anyone down, including yourself and your child.

The regular world of parents and families doesn’t understand the daily lying and theft – the number of calls from the school you get and the emails from angry parents. They don’t lay awake with anxiety over their child’s behaviors every night or feel physically ill on a regular basis because with every 2 steps forward, you’re forced to take 10 steps back. The regular world sees your child as charming and amiable, while you experience something far different behind closed doors. The inability to connect with your child – to feel honest emotions with them – to cuddle them and to look forward to the future together – these are things that the RAD parent faces.

And sadly, children with this disorder come by it quite often from serious neglect and abuse, cycles that continue to play out as they grow older, forever compromising their relationships with the world. As the parents, we feel guilty for even thinking of handing them over to the state, an agency, or even to a hospital – we know our children didn’t create their diagnosis. They didn’t abuse themselves. They were not in charge of anything that lead them to where they are today…

But neither did my 3-year-old son. And whereas I cannot put my daughter’s abusers on trial because this judicial and child welfare system failed her and my older son in such horrific and atrocious ways, all I can do is promise safety to each of them from this day forward. So, to the best of my ability, that is how I will make my decisions. Whether we place or we don’t, I choose to keep my promise to all 4 of my children. I will continue to fight for change to be made in child welfare and I will continue to advocate for the least of these… starting right here in my own home.

If you find yourself in a similar situation, know that you’re not alone. You’re not a failure and you’re not weak. Do all that you can and then trust that God will utilize whatever else is available to do the rest, even if that means it is no longer in your hands.

We’ve got this and we’ve got each other. Many prayers and much love to you all.

The Pre-Teen RAD

I am parenting a pre-teen RAD. By parenting, I mean keeping alive. And by pre-teen RAD, I mean sociopath. Because is there honestly a more difficult combination than Reactive Attachment Disorder and pre-pubescence? I cannot begin to imagine a worse combination, a more deadly mixture that could wreak this kind of havoc on a family! I mean, do I love this kid? Yes (thinks the tiny voice inside my heart that’s currently being bound and gagged by my humanity), but do I like this kid? Nope. Not even a little bit. Not right now.

Judge if you need to, I’m okay with it! My skin has become far too calloused from the past several months of lies and rants, tantrums and rages. I no longer carry the ability to feel “judged” by my peers. It’s kinda like when you reach a certain age and you can convert to leggings and the messy bun (every day for every occasion) – you just sort of quit. Well, that’s how I feel about parenting my son. I am the legging-wearer, the messy bun, the “screw the make-up” kind of mom now… and there may be no turning back!

And these are the reasons why:

Normal pre-teens have crushes, even going as far as to carry the “boyfriend/girlfriend” label for sometimes a week at a time! Whereas my pre-teen? The only girl he notices is his sister, and that’s only because he threatens to murder her in her sleep if she doesn’t empty out her piggy bank to him on a weekly basis.

Normal pre-teens have hobbies or sports and try to appear “cool” – to fit in – to be popular. My pre-teen is as coordinated as a sloth on roller skates, so sports are out. And I don’t know how he does it, but he can’t even make breathing appear anything but painfully awkward. He hates everything and only attempts to make a go at an activity if he might get paid to do so. He literally must be bribed financially to play with children!

Normal pre-teens look forward to school dances and after-school parties. My pre-teen plots ways to steal from those children while they’re busy socializing with friends.

Normal pre-teens start paying attention to the way they look, smell, and act around their peers. My pre-teen still only showers one side of himself, still can’t figure out how a comb works, refuses to wear an outfit combination that could even be considered remotely attractive, and often smells like a garbage truck…. Probably because he refuses to brush and floss his teeth, leaving weeks worth of food and plaque globbed between his braces.

Normal pre-teens plan for summer camp. My pre-teen plans for the psych ward.

Normal pre-teens get a pet and start learning the responsibilities of caring for another creature. My pre-teen kills or harms most animals he comes in contact with. If this is a sign of his nurturing skills, we may have to have him sterilized!

Now, those parents who do not have a RAD child are probably sitting back right now saying that only a terrible mother would right such horrific things about their own child! Eh, perhaps. But I look around and say that I would be a terrible human being if I didn’t warn the rest of the public of my child. I mean, in the words of Antoine Dodson, “hide your kids, hide your wives”, right? This is my due diligence to society… even if I don’t happen to have a wildly popular social media rant-turned-rap in my back pocket!

But for those of you who DO have a child with RAD, I can actually hear your Amens ringing loud and clear across the nation. I feel them in my soul as we stand together and say that parenting a pre-teen RAD is quite possibly the most exhaustingly heart-wrenching thing, the most tediously frustrating thing, the most frightening love-hate thing that has ever, ever been.

So, when you see me, bear with me. Don’t mind my dirty house, my broken objects, or the screaming child coming from the upstairs bedroom. Don’t worry when my child bangs on the car windows motioning for other vehicles to save him from his “abusive family”. Pay no attention to whispers of inappropriate conversation escaping my son’s mouth – the screams, the threats, the hate and disrespect for women…

My mind is now oatmeal, and my ability to carry on a conversation while watching for my child seek out his next victim is basically gone. If I smile maniacally, it is because my resting face is translated to my son that I am in fighting mode. And if I hyperventilate in your presence, I apologize… chances are I’ve been holding my breath until bedtime when I am finally free to ingest air again.

And to all of you other pre-teen RAD mamas and papas out there… my heart is with you. If you’ve kept your child alive, you are my heroes. And if you haven’t, I totally get it. Here’s to 7 more glorious years! (Oh, sweet Lord almighty…)

The Heartbreak of Living

            I would say that my heart breaks on an average of 25 times a day. Some days, some months, that number is significantly more. I think that’s the price we pay for loving people. Honestly, I can’t think of any relationship or situation I’ve been in where there hasn’t been a time of heartbreak. Sometimes I’m even the one doing the breaking. But at the end of the day, the only way to avoid this pain is to hide away and ignore the world entirely – not look at the news, not read social media, not have a family or friends, not leave the house. In a sense, to avoid heartbreak, you can’t actually live.

            However, since I’ve chosen life, I’ve consequently chosen some pain. And true to form, when it rains, it pours. In the midst of grieving a dear friend’s illness, I’ve continued to hear horrendous reports on our little Isaac’s situation. My heart breaks continuously for these two situations alone. Then I’ve had to deal with a personal ordeal that has left me devastated and questioning things about myself that I haven’t felt in a long time – feelings of insecurity and vulnerability – things that have reignited my panic attacks with a vengeance. And then I read the 2016 and what is to date of the 2017 Child Protective Services Annual Reports, only to find that the PA fatality and near fatality rates have more than doubled in this year alone… and we still have 6 months to go! So, my heart broke significantly more, not just for my own situations, but for the hurting children all around me.

            Naturally, in the middle of all of this, my own children decide to let their RAD hang out all over the place. It was only 9:30 am yesterday when I thought I was going to have to admit my oldest to the hospital for his rage (which the poor fellas doing construction on our new house had the privy of hearing). He was told “No”… that was it. That was the “big trigger”. The mooing cries started. The punching his head came next, followed by screaming at a pitch that would compete with a dog whistle. (Obviously I was to blame because I couldn’t understand what he was saying.) As he picked up a toy and cocked his arm, ready to bust out the window in our toy room (it took him over 6 months to save up to get his bedroom window fixed, by the way), I saw my toddler standing in his direct aim. We’d already been to the hospital twice within a week and I instantly feared that my youngest was going to be next.

            Jumping in front of him as quickly as I could, Cameron screamed that he hated me. That I’m a child abuser. That I always blame him for everything. That I’m the worst mother in the world. And when I told him that I was calling the police if he didn’t calm down immediately, he screamed some more and went upstairs to flip his bed. This happened 10 minutes before I had to leave and take Taylor to camp. Knowing that Cameron was hoping his sister would have to miss for the day, I was going to move the earth to make sure she made it, even if she was late!

Thankfully, my pastor’s wife jumped in her car and came to sit at my house while I got my daughter to camp, our builder was ready to step in and assist if needed, and a good friend picked my daughter up from camp, keeping her for a few hours while Cameron eventually calmed in his room.

            That same daughter, however, got mad at Wyatt only a few hours later, shoving him off her tall bed! I went running into the room upon hearing my toddler wailing in a heap on the floor while my daughter tried telling me the most physically impossible stories about what “could have happened” in order to avoid getting in trouble. There was no remorse when I told her that he could have been severely hurt. No. She cried when I told her she was in her room for the night and would miss choir practice.

I screamed like a lunatic for the hundredth time that day, ensuring my craziness to our neighbors. I sobbed, I slammed my door a few times, and I did a whole lot of hyperventilating! To sum things up, I was the perfect picture of an untherapeutic disaster, but I couldn’t have cared less. All I wanted to do was be by myself and sleep for a super long time.

But that’s the thing with choosing to live… you don’t get to step away from hard parenting moments. You don’t get to heal your friends or stop child abuse, fix broken hearts or save the world. What you get instead is an infinite amount of opportunities to be loved. Prayers from a parent, encouraging texts from fellow mothers, a pastor’s wife who will drop what she’s doing to step into your craziness, friends who will listen to your prattling daughter when you just can’t, children who eventually apologize (sometimes), and a God who is bigger than all of your heart breaks.

As always, I blog to process and to heal. My only hope is that someone out there who is also going through heart break will realize that it’s just the cost of living and loving deeply. Look for those moments to be loved back and wrap yourself up tightly in them… even if it’s just a little love from a blogger out in Western Pennsylvania. My heart is with yours.

"Attachment Disorders" - A Call for Clarification

Lately there’s been lots of talk about Attachment Disorders. I, personally, have been contacted by multiple people, both in the field of psychology and laypersons, telling me that my discussions of RAD are inaccurate or outdated. Others have even said that these disorders dealing with attachment don’t even exist. Actually, I appreciate this feedback greatly, because if there is new research being done, then you better believe I want in on it! I have two children suffering from mental illness and would love nothing more than to find new solutions to this problem.

However, some are under the belief that the phrase “Attachment Disorder” is faulty because Attachment Disorder is not in the DSM-V. Now, you and I may differ in the way we word things, but if a person comes to me and says they have “depression”, I immediately understand some of the basic symptoms they’re referring to. I would gather more information by asking if they have MDD, Bipolar, the frequency and length of the symptoms, etc. But because there are so many diagnoses that deal with depression, I don’t immediately jump all over that person for telling me they have a diagnosis that doesn’t exist… I understand that they are using a general term to express their symptoms.

That being said, when someone speaks to me about Attachment Disorders, I understand that they are speaking of a general group of diagnoses having to do with attachment issues, not claiming that Attachment Disorders is in the DSM. A major difference from the DSM-IV to the DSM-V is the separation or Reactive Attachment Disorder: disinhibited type and Reactive Attachment Disorder: inhibited type. RAD is now strictly referred to in its previous inhibited form, meaning that a child “is diagnosed when a his/her social relations are inhibited and, as a result, he/she fails to engage in social interactions in a manner appropriate to his/her developmental age. The child may exercise avoidance, hyper-vigilance or resistance to social contact. The child may also avoid social reciprocity, fail to seek comfort when upset, become overly attached to one adult, and refuse to acknowledge a caregiver. Links have been shown between RAD and future behavioral and relationship problems.” (APA 2013)

On the flip side of attachment is Disinhibited Social Engagement Disorder (DSED). This is what was previously known as RAD: disinhibited type. This means that there “is the absence of normal fear or discretion when approaching strangers. The child is unusually comfortable talking to, touching, and leaving a location with an adult stranger. These behaviors are not the result of attention problems or other issues that might be associated with impulsive behavior.” (APA 2013)

And yet, in that same DSM that is quoted above, very few behaviors are listed. It goes on to talk about causes and criteria for the diagnoses, but there is very little listed by way of symptoms. So, does this mean that children who struggle with attachments have no behavioral issues?

Of course not. What that tells me is that the American Psychological Association doesn’t want to write the Encyclopedia Britannica as the DSM – they would rather the book be used to help doctors diagnose, not list every symptom that could be possible for every case ever. They are very wise.

Therefore, when looking at “Attachment Disorders” (I can feel the emails coming in as I write that!), we look at the causes of RAD and DSED and other trauma-related disorders. We recognize that neglect, abuse, institutionalization, and multiple changes in care givers create the issues of attachment. And for some of those children, they struggle to accept affection or are unable to be consoled (RAD) whereas others willingly talk to strangers, are clingy, and require ALL of the physical attention they can get (DSED). In both of these cases, children can fall on a spectrum ranging from mild to severe.

And what determines where a child falls on that spectrum? The behavioral symptoms associated with the causes of the disorder. That means that these children who have faced horrible atrocities or never had their needs met as wee little ones will display behaviors associated with the traumas that they experienced. We don’t need the DSM-5 to tell us that these children may steal, lie, manipulate, or become aggressive. Because we already know that children who have gone through these life experiences will respond to people and daily circumstances in a way that protects them from the world and gets their needs met, since they couldn’t always depend on the adults in their lives to do that for them (hence the lying, stealing, aggression, and manipulation).

Look, my goal is not to argue semantics. There is new research coming out constantly, new studies being done regarding children with early childhood trauma and how it effects their attachments to others. Some face mild symptoms whereas others face severe ones. But to say that the diagnoses don’t exist or that these symptoms are not listed in the DSM-5 and can’t possibly be attributed to children with attachment disorders – well, this undermines all the parents, doctors, therapists, and children who are daily living it.

These issues are not a quick fix. There is no pill or specific therapy that will treat each child and cure each symptom. And as a child ages, these symptoms may change, as will their treatment. But what we can say for a fact? Consistency, unconditional positive regard, and structure are the best tools to combat a terrible set of diagnoses. So, whatever you choose to call it, whatever label you prefer, remember that there are people out there working on ways to best heal their children – and your labels and criticisms are not required. Jump in and help, by all means – we need it! But please leave the judgments at the door.

Blessings to you and thank you for all the research, resources, and love you provide to a population of hurting children!